Ramesh Darji was just 15 days old when his skin started to peel – only to be replaced with thick black scales.
Now the 11-year-old struggles to even enjoy play time, as his appearance terrifies other children leaving him isolated from the world around him.
The rare and incurable skin condition Icthyosis has stolen away the youngster’s ability to walk and talk as the painful scales harden and twist his limbs.
Nanda said: “His skin started peeling off 15 days after he was born and then new skin began to grow very thick.
“It hardened and turned black, we had no idea what to do about it. No one helped us.
In fact, doctors in Baglung, the remote Nepalese region where the family live, seemed bemused by what they told them was a ‘fungal infection’ and said they couldn’t help.
All the while, Ramesh was getting worse.
‘By this fifth birthday he began to say his body was in pain and he couldn’t walk,’ said Nanda. ‘He’s never really been able to explain anything to us either.
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