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The boy slowly turning into STONE: Meet 11-yr-old with tragic skin condition that makes him a statue

KATHMANDU, NEPAL - MAY, 04, 2016: Ramesh Darji, 11, who suffers from a rare skin disorder called 'Ichthyosis' (a genetic skin disorder in which people suffer from dry, thickened, scaly or flaky skin) applies moisturising cream to his body at his temporary residence in Kathmandu, Nepal. nnRamesh suffered from this condition since his birth and his baby skin started peeling off 15 days after his birth and then the new skin grown on his body was really thick . He cannot use his legs and several body parts which have been severely affected by this disease. nnRecently British soul singer, Joss Stone performed live at Hyatt Regency Hotel in Kathmandu and raised funds for Ramesh's treatment.nnPhotography by : Cover Asia Press / Laxmi Prasad Ngakhusi
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11-year-old Ramesh Darji of Bhimgithe in Baglung district suffers from a rare fungal disease and his condition is getting worse as he gets…

When Nar Kumari held her little boy for the first time, he couldn’t have been more perfect.

Smiling back at her, Ramesh looked like any other bouncing baby boy.

But just 15 days after she got him home, her son’s skin began to peel and was replaced by thick, black scales which have been slowly and painfully entombing him since.

His rare skin disorder is slowly turning him into a stone statue has robbed the 11-year-old of his ability to walk and even talk.

Ramesh’s scaly appearance meanwhile terrifies other children, leaving him isolated and with no friends.

And for a long time it seemed there was no hope for a cure, leaving his desperate mother and her husband Nanda helpless to do anything besides watch him slowly turn to stone.

Nanda told MailOnline: ‘His skin started peeling off 15 days after he was born and then new skin began to grow very thick.

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‘It hardened and turned black, we had no idea what to do about it. No one helped us.’

In fact, doctors in Baglung, the remote Nepalese region where the family live, seemed bemused by what they told them was a ‘fungal infection’ and said they couldn’t help.

All the while, Ramesh was getting worse.

‘By this fifth birthday he began to say his body was in pain and he couldn’t walk,’ said Nanda. ‘He’s never really been able to explain anything to us either.

‘He is only able to inform us when he’s hungry or wants to use the toilet. He used to sit and cry but we didn’t know what was hurting him or how to help him.

By age six, the condition had left him unable to walk, and so he has never been to school.

Even when Nanda, 35, and Nar, 26, did discover the cause, an extremely rare condition…

 Read more at: Mail Online


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